Hello! My name is Aedín. I’m a perpetual 17 year old trapped in an unobliging ageing body. As such I still haven’t figured out what it is I’ll do when I grow up and am very open to suggestions!
I started this blog as a way of dealing with the fact that my first born child arrived into this world carrying a little something extra. A little something that society has not always looked favourably on-an extra chromosome on the 21st chromosomal pairing, or put another way she has Down syndrome.
I grieved for the “perfect child” faith had so cruelly denied me; threw tantrums and sulked with the universe until one day, the tiny adult voice of reason inside me I normally have silenced by endless reruns of Buffy the Vampire Slayer and mountains of Toffy Pops said very clearly:
Yes she has Down syndrome, but that’s not going to stop her from running, jumping, dancing, singing and living life to the full. It’s just going to take a little longer to achieve than for her peers but she’s clearly amazing so how about you get to know this amazing little person you helped create. How about forgetting what she can’t do and enjoy the things she can do. She may surprise you.
And she does every day. She is what I imagine every toddler to be like- full of love and enormous fun. Except when she’s wearing her super cranky pants. Then she’s a bit of a pain to be honest.
Thank you to everyone for stopping by and having a bit of an old perusal and if you like what you read, you can catch some more of my musings here on www.ramp.ie.
We loved the blog called The Power of Words from Aedin so had to share
A short and sweet blog post this week about the magic of words. How we use them makes a big impact on even the smallest of our day to day dealings with other human beings.The right words can bring an instant smile to our faces, the wrong ones can cause the mental defences to be raised and negativity to shroud our conversations.
I was at a hospital appointment this week and an indepth medical history was being taken by the nurse. One such question was did I have any kids, leading to what ages they were and did they have an illness or disability. My reply was “Mini, age 2,Down syndrome” while I braced myself for a possibly well meaning yet horribly ignorant standard sympathethic response. Instead the nurse surprised and delighted me by taking a different route.
“And how is she getting on?I bet she’s getting into everything.”
“Yes, she is,” I replied, relief flooding through me as me mental defences stood down.
“I bet she’s not letting it stop her in any way.”
Damn right she isn’t.